Pet scan…

From October 23, 2014 through January 2015, Jake had countless blood tests, MRI’s, cat scans, lung scope and lavage, and a dozen spinal taps. Nothing was conclusive; results were varied and sometimes perplexing, and every culture was negative. Normally one would hope for a negative result. Jake continued to deteriorate.  The infectious disease team walked away for the 3rd time, concluding it was not infectious. Autoimmune made sense, but Jake had not responded to the Remicade.  Samples were sent to Mayo. Dave and I traded every night- never leaving Jake alone. Soon after the shunt was adjusted, Dr. S. stopped by to say he was going to try to get a pet scan approved by our insurance. They were missing something. Maybe it was more than Jake’s lungs that was affected. Maybe it was a different organ.  It was most likely connected to his NK cell deficiency,  but not enough was known about it to know for sure. The pet scan can reveal things that no other test can. It is expensive, but it has saved many from exploratory surgery. The next day, Dr.S. asked me to come out into the hall. He had a computer on a cart. “I want to show you something,” he said as he pulled up Jake’s images. It was Jake’s lungs. Hidden in the upper right lobe,  surrounded by undefined lymphatic tissue like a cocoon, was a green, glowing mass the size of a golf ball. It was a last minute Hail Mary play that saved Jake’s life…”What do you think that is?” he asked. Histoplasmosis? 

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