Rockstar. ..

While Jake was admitted for a fever, which became the first priority, we were still concerned that the pressure was not being controlled like we’d hoped.  Dr. S. researched a little deeper,  and though very unlikely,  it was possible it could siphon out too much cerebrospinal fluid. What are the odds? Jake had already been referred to as the 1: 1,000,000 kid, but could he be that unlucky?  Dr. S. reached out to Dr. F., who had performed the surgery. “Impossible, there’s no way that shunt malfunctioned.”  There were infectious disease teams looking for infection,  dermatologists looking at his rash  (which perplexed everyone who saw it), physical therapists, chaplains, social workers,  pulmonologists, and the hospitalists coming in and out all day long. Jake was growing weary of it. It was late January by now, and he wasn’t any better than before. Finally we got angry. We were tired of waiting, tired of no answers, tired of watching Jake suffer… Dr. S. stopped by late one afternoon , and again we discussed the possibility the pressure was too low. Instead of going home for dinner, he prepared for a spinal tap. We watched and hoped for a normal reading.  There was no reading…he could not get a single drop to come out. Our fear seemed likely- he’d been lying there for 3 weeks with no cerebralspinal fluid… 3 days later, on a Friday afternoon- just before another long weekend- Dr. F. showed up to adjust the shunt. Dr. S. said loud enough to hear, “You’d think you were a Rockstar…I’m glad you finally graced us with your presence. “

Leave a Reply

Your email address will not be published. Required fields are marked *